Can I tell you much I love the morning time just before all the kiddos get up? I sit at the computer with my coffee and it's so quiet. It's a chance to think about how cute and special they all are before they start driving me crazy.
This morning I had to get on here and make sure I documented Brady's successes. Here is a list of foods currently being eaten...
1. turkey
2. sausage
3. carrots
4. greenbeans
5. broccoli
6. squash
7. applesauce (favorite)
8. banana
9. peaches
10. SCD legal almond banana loaf (bread)
11. GF pretzels
12. Larabar (fruit & nut bar)
13. freeze-dried apples & pears
14. fruit leathers
15. boiled eggs
16. scrambled eggs
17. SCD legal almond pancakes
Can I tell you good it is to feed him? It takes nearly 35 minutes for him to eat an entire meal but I am loving it!!! We can't believe the sheer quantity of food he consumes now. I'll post a picture later today of one of his plates before and after a meal.
Also Brady peed in the potty last night!! I am optimisitcally excited because I swear he knew what he was doing. Because when I first asked him if he wanted to pee in the potty (just before bathtime) he stood in front of the toilet imitating his daddy. I giggled because he's too short and I realized O.M.G he's been watching and learning! YAY! So I picked him up and put him on the potty seat and nothing happened for awhile. Well except for Sadie trying to figure out what that is the big brother Brady has that she doesn't. LOL Then all of a sudden we had pee! Pee all over the potty seat till we guided it into the direction it needed to go.
I praised him like crazy and he grinned at me. I'm thinking he fully understood it all.
He's healing.
You can tell.
Slowly.
He's healing.
Monday, August 11, 2008
Wednesday, July 30, 2008
Feeding Clinic went well!
Geez, I suck at this blogging thing. I just have very little energy left at night.
So Brady went this past Monday and Tuesday for his feeding therapy with the C.A.R.D feeding specialist. The first half of Monday morning was UGLY! I sat in the floor with tears rolling down my cheeks. He fought it so hard. He ended up covered in food, sweat, and tears. It was terrible to watch. He'd gag nearly puking when they put food in his mouth. What they did wasn't novel really but what parent can do that to their own child? Not this mother.
After watching him she suggested we try pureeing all the foods for the afternoon sessions. That went sooooo much better. He fought the first few bites but then he was eating the food! Turns out Brady still has a strong tongue-thrust and he doesn't know how to chew food. Everything he has been eating requires very little chewing and nearly melts in his mouth. Four years old and can't chew food. It made me sad at first and then angry. Angry that not one other professional noticed this or inquired.
He was down to eating nothing but potato chips and soy yogurt. No one seemed alarmed. So we had to spend $2000 and get him help ourselves. I am happy to say that today Brady ate carrots, banana, applesauce, greenbeans, egg, turkey, and almond banana bread. All pureed but eaten all the same!
SCD here we come!!!!!!!!!!!!!!!! I can just feel good things for Brady this year. His eye contact has been out of this world. There are times when he literally has a stare down with you. And sometimes he'll look at you and get the biggest grin ever. It's so stinking cute.
So Brady went this past Monday and Tuesday for his feeding therapy with the C.A.R.D feeding specialist. The first half of Monday morning was UGLY! I sat in the floor with tears rolling down my cheeks. He fought it so hard. He ended up covered in food, sweat, and tears. It was terrible to watch. He'd gag nearly puking when they put food in his mouth. What they did wasn't novel really but what parent can do that to their own child? Not this mother.
After watching him she suggested we try pureeing all the foods for the afternoon sessions. That went sooooo much better. He fought the first few bites but then he was eating the food! Turns out Brady still has a strong tongue-thrust and he doesn't know how to chew food. Everything he has been eating requires very little chewing and nearly melts in his mouth. Four years old and can't chew food. It made me sad at first and then angry. Angry that not one other professional noticed this or inquired.
He was down to eating nothing but potato chips and soy yogurt. No one seemed alarmed. So we had to spend $2000 and get him help ourselves. I am happy to say that today Brady ate carrots, banana, applesauce, greenbeans, egg, turkey, and almond banana bread. All pureed but eaten all the same!
SCD here we come!!!!!!!!!!!!!!!! I can just feel good things for Brady this year. His eye contact has been out of this world. There are times when he literally has a stare down with you. And sometimes he'll look at you and get the biggest grin ever. It's so stinking cute.
Sunday, May 11, 2008
Thankful and angry.
I feel a need tonight to talk about how thankful I am for Brady and our other children. Brady has been nothing but a joy. We love that little boy more than life itself and we'll always thank god for all the blessings he's given us.
I wouldn't say that the actual autism is what's been so hard. What's been hard is getting the proper treatment and education for Brady. We would be able to focus so much more time and energy on loving him and our other children if there was more help available. His pediatrician thinks autism isn't something that can be medically treated. She's still trying to figure out why Brady has had diarrhea for the past two years because of course diarrhea has nothing to do with autism according to her. Whatever.
Then there's the educational piece. If you have the available funds your child with autism may get all that he/she needs. Those without the proper funds are left scrambling. Don't count on the school system to give them what's appropriate. Instead they will try and fit your child in their budget, in their little classrooms whether it's the appropriate placement or not. It doesn't matter if your child can't learn in that enviroment. They aren't going to spend more to give them what's appropriate, what they are legally supposed to do. It's really sad when I look at the surrounding counties and see what services children with autism are getting. I can tell you they are much better services than what my child is getting. The only way he'll get what is legally appropriate is to take legal action. And the schools bank on the fact that most families don't have the funds to pursue such action. It's wrong wrong wrong! They would rather spend the money on an attorney than spend it on your child. Believe it people.
Sometimes in life you have to make a point. You have to take a stand and defend what is right. Sometimes you have to force people to do the right thing. That time in life is NOW! My son will not ignored or written off. I will not be railroaded. I am not scared. I am determined. There is nothing stronger than a determined mother who is defending her child. Lookout.
I wouldn't say that the actual autism is what's been so hard. What's been hard is getting the proper treatment and education for Brady. We would be able to focus so much more time and energy on loving him and our other children if there was more help available. His pediatrician thinks autism isn't something that can be medically treated. She's still trying to figure out why Brady has had diarrhea for the past two years because of course diarrhea has nothing to do with autism according to her. Whatever.
Then there's the educational piece. If you have the available funds your child with autism may get all that he/she needs. Those without the proper funds are left scrambling. Don't count on the school system to give them what's appropriate. Instead they will try and fit your child in their budget, in their little classrooms whether it's the appropriate placement or not. It doesn't matter if your child can't learn in that enviroment. They aren't going to spend more to give them what's appropriate, what they are legally supposed to do. It's really sad when I look at the surrounding counties and see what services children with autism are getting. I can tell you they are much better services than what my child is getting. The only way he'll get what is legally appropriate is to take legal action. And the schools bank on the fact that most families don't have the funds to pursue such action. It's wrong wrong wrong! They would rather spend the money on an attorney than spend it on your child. Believe it people.
Sometimes in life you have to make a point. You have to take a stand and defend what is right. Sometimes you have to force people to do the right thing. That time in life is NOW! My son will not ignored or written off. I will not be railroaded. I am not scared. I am determined. There is nothing stronger than a determined mother who is defending her child. Lookout.
Sunday, May 4, 2008
Ah-kul....means tickle in Bradinese!
I am so excited! Brady has been using two words spontaneously.....go and tickle. It's too cute. He can't articulate tickle too well so it comes out ah-kul. And boy oh boy does he like to be tickled. He said it to me spontaneously today while looking me directly in the eye. I thought I'd jump over the moon with happiness.
Go Brady!!!
Go Brady!!!
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