He was mad at me the first day for putting it on him. He asked us to take it off many times by holding his ankle up. We told him no and explained that he had to wear it for his safety. He hasn't asked since then.
Sunday, December 27, 2009
Project Lifesaver!!
On December 22 an officer from the Stafford County Sheriff's Department came and now Brady is all set up with Project Lifesaver. PLS is an amazing tool and has saved many lives. I'm thankful we have such technology to keep Brady safe. We had to pay $200 for the transmitter and then $25 a month for a new battery. Most counties surrounding us offer it for free but our county doesn't get very many sponsers so we have to pay. This is a trend with Stafford County in general.
He was mad at me the first day for putting it on him. He asked us to take it off many times by holding his ankle up. We told him no and explained that he had to wear it for his safety. He hasn't asked since then.
He was mad at me the first day for putting it on him. He asked us to take it off many times by holding his ankle up. We told him no and explained that he had to wear it for his safety. He hasn't asked since then.
Monday, December 21, 2009
Colonoscopy and Endoscopy scheduled
January 15 Brady will have his second scope.
Dr. Hart is concerned with Brady's poor growth. Currently Brady weighs 37 pds which is in the 10th percentile. He continually moves down in percentiles. He defenitely has malabsorption issues. He is concerned as I am about his pancreas. He is going to do a pancreatic enzyme stimulation by administering Secretin during the scope. I am anxious to see if Brady does in fact have pancreatic insufficiency. We'll accomplish this by aspirating the intestinal contents and sending them to an outside lab to assess the function and adequacy of his pancreatic enzymes. Brady often has moderate amounts of fat in his stool indicating he's not making enough lipase enzymes. We'll see.
Brady started the GFCF diet March 21, 2006....nearly four years ago. Starting this August we started allowing him to have gluten and casein with enzymes. I am afraid that he's not able to tolerate them even with enzymes. Dr. Hart agreed much to my dismay.
I'm anxious for this procedure.
Dr. Hart is concerned with Brady's poor growth. Currently Brady weighs 37 pds which is in the 10th percentile. He continually moves down in percentiles. He defenitely has malabsorption issues. He is concerned as I am about his pancreas. He is going to do a pancreatic enzyme stimulation by administering Secretin during the scope. I am anxious to see if Brady does in fact have pancreatic insufficiency. We'll accomplish this by aspirating the intestinal contents and sending them to an outside lab to assess the function and adequacy of his pancreatic enzymes. Brady often has moderate amounts of fat in his stool indicating he's not making enough lipase enzymes. We'll see.
Brady started the GFCF diet March 21, 2006....nearly four years ago. Starting this August we started allowing him to have gluten and casein with enzymes. I am afraid that he's not able to tolerate them even with enzymes. Dr. Hart agreed much to my dismay.
I'm anxious for this procedure.
Friday, November 20, 2009
Seriously?!
I want to blog more often I just often lack the energy but with what I'm about to discuss I might have some early morning time to start blogging.
I'll get to his lab results in a minute but first let me discuss our newest issue. Brady has decided about 1-2 times a week to get up early. Like WAY early. This morning he woke at 2:45 am. So I've been up for a couple hours already and it's only five. -sigh- I'm so tired. It's really going to hurt later. I'm actually scared this isn't a temporary thing. I can't imagine doing this week after week.
Labs...EEG was normal. The mainstream docs called his MRI normal despite some mild abnormalities. Dr. Mumper however isn't going to look over the abnormalities. She things a SPECT scan would be a good idea to see the brain function. We've got to keep looking!
I'll get to his lab results in a minute but first let me discuss our newest issue. Brady has decided about 1-2 times a week to get up early. Like WAY early. This morning he woke at 2:45 am. So I've been up for a couple hours already and it's only five. -sigh- I'm so tired. It's really going to hurt later. I'm actually scared this isn't a temporary thing. I can't imagine doing this week after week.
Labs...EEG was normal. The mainstream docs called his MRI normal despite some mild abnormalities. Dr. Mumper however isn't going to look over the abnormalities. She things a SPECT scan would be a good idea to see the brain function. We've got to keep looking!
Sunday, May 24, 2009
Loving the neurologist!!
Finally a mainstream doctor who wants to find out what the hell is going on with Brady! She said it's not ok that he lost his language and we have to turn all stones to see if we can find why.
She ordered....
an MRI
24 hour video EEG
full metabolic workup
neurogeneticist
I am very interested to see the results. My biggest fear is that they will all be normal. What the heck do you do with normal? You can fix normal. His EEG is scheduled for June 1.
She ordered....
an MRI
24 hour video EEG
full metabolic workup
neurogeneticist
I am very interested to see the results. My biggest fear is that they will all be normal. What the heck do you do with normal? You can fix normal. His EEG is scheduled for June 1.
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